
Have i ever made you smile..if so when? "You're alive. If you want I can fly."
were rated the most passionate, the most pure. This one left them all behind."


A Random look at what we are like on the inside... No smoke and mirrors here. (o.k. maybe one mirror)

Have i ever made you smile..if so when? "You're alive. If you want I can fly."
were rated the most passionate, the most pure. This one left them all behind."


Posted by Reese at 12:47 AM 1 comments
These are some videos of Alyssa sharing her breakfast with Baby. This is a baby that my mom gave to her at Christmas. She is best friends with her and has named her "Baby." I say best friends rather than Baby's mommy because no mommy would treat their baby the way that Alyssa treats this one, but they are friends because they do almost everything together. Baby is even trying some potty training.
Alyssa is turning 2years old in April and we will be having a family time tea party together. She also wants to invite Baby and some other dolls so these videos are how we practiced sharing. Alyssa doesn't really know how to share in the first video but in the second one she finally gets it.
Posted by Reese at 10:06 AM 2 comments
When we take a break it is usually a time to let go of what we have been doing. A time to drop everything and decide what our next move might be or just a time to relax and let go of what we have known as normal. A time for reflection and meditation. A time to rejuvenate and restore our hearts and minds.
This week is when my boys have "Spring Break" from school. I think we will all be taking a "Spring Break" and find a way to reconstruct and our way of doing family. We will have fun along the way, but mostly we will be processing a plan for the way we do our family living. This is the time for Change. This is the time.Posted by Reese at 1:32 AM 3 comments
We have started Potty Training with Alyssa!
Posted by Reese at 10:44 AM 0 comments
It was a busy weekend. First we started early Sat. morning with a Easter Egg Hunt at the school my sister teaches at. They started the hunt with a Scavenger Hunt. The boys would find a clue and follow it to the next egg and clue. Alyssa tagged along, but wasn't really sure what was going on.
We then had to leave that party early so that we could pick up the kids for the next party. Josiah's best friend (only real friend) was turning six and having a pool party at the YMCA. The party was a blast. The boys had lots of fun. Alyssa was scared at first because of it being indoors and so loud,
but once we got her splashing she had fun too.
We heard an incredible message from Philemon. The kids loved their class too. Karston and Josiah made some new friends and had a great time. Alyssa was just happy to be shown off to all of Aunt Angie's friends. We stayed after church for a meal of Macaroni and Hot Dogs. We got a chance to spend time with many of her new friends and to see why she is so happy at her church. We then spent the afternoon grocery shopping. When we came home we did some cleaning and some decorating chores in our kitchen and dining area. A huge Thank You to my wonderful husband that completed the "honey do" list I had created over the previous week. So that was our weekend in a whirlwind. We are now ready for the week ahead.Posted by Reese at 12:14 PM 0 comments
Just wanted to let you all know that there are a few new blogs that have become very important to me and could be of interest to you. 
First of all, my wonderful husband has updated his blog after a break of two years and is again excited about being able to share some of the thoughts that have been brewing in his heart and soul. You really ought to see what Heath has to say.
Secondly, my sister, Angie has joined the blogging world. She mostly decided to start blogging just to be able to process thoughts or poems of her own. As I have read her blogs about her thoughts on Spiritual matters, her own poems along with some from others, and her interpretations of a philosophy class she has been taking, I realized that you too might like to read some of what she has to offer. She would never advertise herself, but her blog is definetly worth reading.
Some of our friends have recently shared their blogs with me as well and I have put a link to all of them on my blog. Enjoy and share a comment or two so they are encouraged to keep it up.
Posted by Reese at 11:47 PM 0 comments
would live if we did have that much. After taxes taking half and tithing on 10% we would be left with $123 million. Putting alot of it into investments and savings so that neither of us has to work again, we would then pay off all debt, the house, and buy new cars (in cash.) We would then help family members to be able to pay off debts and learn ways of securing their futures. We would then have money that we could just Blow. So the question became what would you blow the money on?
Karston said that he would buy a car that was red and shiny and didn't have a top on it (all while pretending to drive and making the sound of a race car.) Josiah said that he would want the same car as Karston except that his can go
off road. I am sure that there are many other things that would be age appropriate that they would ask for as well. I know that they have been asking for a treehouse for a couple of years now.


visit.) I would also spend some of the money on adopting children from abusive homes. The only other thing I can think to spend it on is remodeling our house. 

Posted by Reese at 2:08 PM 0 comments
We also brought in "Fish and Chips" or fish and fries. Funny story here. I tried to be authentic and fry the fries at home instead of baking them, but I got burned on the oil several times and then the kitchen started filling with smoke and the fries did not look yummy. So, I did the only thing I could do. I went to McDonalds and bought some fries and then put them in my own container to take to the school. They were a big hitEven Alyssa became part of the class.
Posted by Reese at 4:17 PM 2 comments
When did I become so competitive? Well, I think that is what happens when you marry a man that is competitive and then start having family game night with the kids. As a family we try to have family game night as often as we can. The kids all got board games for Christmas from our families. It has been so much fun to enteract in such a fun way.
competitive. If he doesn't win, he says "I Never win." I don't know if that comes with his age or his personality. Josiah has a very different reaction. Josiah is usually the one that wins, but throughout the entire game he is saying "I hope that mom wins." Isn't he sweet? Even when I am in last place and there is no chance of me catching up (happens often) he is still rooting for me to win. If Daddy wins, everyone is upset, except for daddy. Karston is upset that he didn't win, Josiah is upset that mommy didn't win and I am upset that Dad won Again. Oh well, no matter who wins we all know that we had a fun night. Posted by Reese at 9:49 PM 1 comments
this would happen and actually dreaded it coming the first time. Well, the first time was really no big deal. We were able to keep her and Romeo seperated with baby gates and she stayed at the back door entry. She mostly slept on the rug and wanted to be left alone. There was some bleeding, but it wasn't much and all in all we felt pretty lucky considering the stories we had heard. Well, this time is a whole new story. Posted by Reese at 12:59 PM 2 comments
Posted by Reese at 2:50 AM 1 comments
Many times I have written this up and then decided not to post it for one reason or another. Maybe nothing needs to be said and then maybe everything needs to be said.Most people that know me, know that I have a son that was born with a Spinal birth defect. He was born with Lypomyelomeningocele. It is a form of Spina Bifida. This is a very rare defect. The link above has lots of really good information and definitions. Much more than I could ever tell you.
What I could tell you is what we have been through in the last 8 1/2 years. After Karston's first surgery at 10 days old, he progressed very normally. At the age of 2yr old we started to see his left leg and foot get affected. We took him to many doctors and they said that he would grow out of it. Just before he turned three we moved to the Chicago area and his new pediatrician sent us immediately to Children's Hospital. He then had to have two more corrective surgeries and started to wear the brace on his leg. We went through weekly physical therapy and had many difficulties in potty training. He still wears a pull-up at night. At age 6, Karston started a process of bladder stimulation. After several months of what Karston felt was torture, we found that it was not working for him. We then went to a catheter every 2 -3 hours and he now does this himself. He still finds it invasive and irritating that he has to use these methods. He is only 8yrs old so he is not really great at doing it when he is supposed to. Many kids don't understand that Karston is different and they ask him many questions. He often times doesn't know how to answer or just gets tired of explaining it so much. There is alot of emotional conflict for Karston and for us as his parents.
I have to say that I am very proud of my son and all that he can do and has done despite this disability that should be holding him back. For the most part Karston seems very normal and you would never know that he has had three surgeries and many different
treatments. He does wear a brace on his leg, but it does not hold him back and after being around him for a small amount of time it will disappear in your mind. In fact he has broken many braces because they are not made to be able to withstand his abilities. He is an extraordinary young boy and I know that God has something Big for him, even when he doesn't see it.
Among all of the physical and medical parts of this journey, we have also had to deal with the emotional and mental parts too. We have had many talks and many crying sessions with him about what he has to do and why he is not "normal" like the other kids. Most of the time, he understands, but I can't help but see how his self esteem gets torn every time. He has a very gentle spirit inside and while that is what makes him loved by everyone, it is also why he so deeply hurts at times too. We try to balance the fact that we have to do what we have to do and constant questioning doesn't make it all go away, with the feelings of needing outside support (not pity) and understanding from other people that have gone through similar difficulties. It is hard to ask for help, but even harder to know who to ask for said help.
Our hearts are tired and our minds are not understanding of God's ways, but we will not give up. Karston's life is a blessing to this family and everyone he meets. By God's grace we will survive and we hope to impact other peoples lives along the way.
Please pray for us as a family to be able to support each other. This will be an issue that Karston deals with for the rest of his life and as a family we will need patience and endurance for whatever else may come.
Posted by Reese at 5:36 PM 0 comments